I spent a few minutes going through RA Guy’s Super Hero Wall of Fame today. I was struck by the tremendous diversity of the people who have posted their profiles there — young, old, male, female, foreign and domestic.
I was also struck by how the people described themselves (and am often struck by the same impression when I read the “about” pages on blogs). It’s not like an AA meeting where everyone stands up and says, “Hi, I’m [insert name] and I am an alcoholic.” Rather most descriptions talk about people’s lives and then, oh yeah, I also have RA/Fibro/etc.
I think it’s a powerful thing that so many people use RA in the description of themselves, but do not see themselves as being defined by it. It’s never, “I am an RA sufferer who is also a mother/teacher/fireman/Indian chief.” It is always, “I am a mother/teacher/fireman/Indian Chief and I have RA.”
Life comes first, RA comes second.
I hope that happiness and health are in your description of your life today. Thanks for checking in.
I like this Carla.
Hi Carla,
I appreciate your remarks and insight. “Life comes first; RA comes second” is a great tagline. This tagline confirms a solution that I had been considering today about how much I should immerse myself into the all-consuming world of RA. There is a perfect, achievable balance if we focus on RA taking a backseat to life.
Thanks again!
I love to live, laugh, and enjoy my life as much as possible and look at ra as a backseat companion indeed! Loved the post, it is so true. Or rather, it should be true
Carla,
I love reading your thoughts. I’m a retired newspaper reporter & would love to start a blog of my own. Can you tell me how to do it? I think it would be very therapeutic on both my good & bad days to express my feelings in writing. I used to keep a journal at home until my right hand (I’m right-handed) became too crippled to write on my bad days (when I really needed to write the most) I’ve taught myself to type left-handed but don’t know how to set-up a website or blog. Any guidance would be greatly appreciated:)
Missy
Blogging is actually very easy. There are several free blogging services — wordpress.com and blogspot.com to name two of the most common. Simply log in there and start posting blogs. The sites are very intuitive to use and there is all kinds of online help if you have any questions or problems. Good luck. It will be nice to hear your voice in the community.