Tags

, ,


It’s been crazy since the New Year hit with lots of work deadlines, stress, and now upcoming travel. I hope your year is starting out calmer. I wanted to take a minute to provide you with some quick updates, as follows.

  • Kineret. I started my new biologic, Kineret the Sunday after Christmas, so I’ve been on the drug about 10 days now — much too early to say whether it’s working or not. I think I generally am feeling a bit better, not so stiff and sore all over in the morning. However, I have developed some consistently tender spots in my joints. I am hopeful this is just the result of being off a medication that actually works for so long before starting Kineret. My major concern with the drug was the reports of injection site reactions. I experienced no reactions at all the first week, but the last couple of days I’ve developed a mild redness/rash around the site immediately after injection. The only other complaint (if anything so minor can be considered a complaint) is that the injection really, really stings. The needle is very tiny so that doesn’t hurt at all, but the solution has citric acid in it as a preservative. Think about getting lemon juice in a paper cut. The stinging fades very quickly but it sure gets my attention when I’m doing the injection.
  • Creaky Joints Web Chats. If you’re not familiar with Creaky Joints’ Joint Decisions web chats, you should check them out. The next one is Wednesday, January 14 at 7:00 pm ET / 6 pm CT. It’s entitled “Right Track RA: Helpful Tips for Continued Success in the New Year.” The Joint Decision and registration links are:

Joint Decisions Webpage: http://bit.ly/1vJ79kq
Registration Link: http://bit.ly/1uMMSi4  (you need to register)

     You can watch the previous chats here:
     Chat 1: http://bit.ly/1xSbcPA 
Chat 2:
http://bit.ly/1AHLBZS 
Chat 3:
http://bit.ly/1Al4NhR

  • Petition to add RA to the Social Security Administration’s Compassionate Allowance List. RA SuperGirl has created this petition. The Compassionate Allowance List is an official list of conditions that allows the Social Security to act quickly when someone with one (or more) of the conditions applies for disability. Whether you agree with the premise or not, you have to applaud her activism. Link to RA SuperGirl’s blog post here. Link to the petition here.

That’s all the news for now. I appreciate you checking in.

Advertisements