It seems like forever since I posted but I have really, really good excuses (really I do).
Two weeks ago it was once again my great pleasure to attend a Blogger Summit hosted by Joint Decisions (http://jointdecisions.com) and sponsored by Janssen Biotech*. If you don’t know about Joint Decisions, it’s a great informational/educational/research resource and I encourage you to get better acquainted with them. The overarching goal of the Summit is to explore both topics that are important to RA patients and channels in which to best deliver the information. I’m going to delve into the topics in future posts, but you can look forward to things like nutrition, conversations with your rheumatologist, and biologics. In addition, if you have ideas on education/information that you think would be helpful, feel free to leave a comment on this blog and I’ll make sure it gets passed along to the Joint Decisions team.
Joint Decisions has previously held a series of live Web Chats on specific topics and one of the things we explored was whether there was a better way to convey this information. Some of the things we discussed were shorter formats (the chats came with a one-hour commitment) and on-demand videos that people could watch when their schedules allowed. I think the information is too important for Twitter, but podcasts were also discussed. I would love to get your feedback on what kind of information you’d like and how you’d like to get it. Perhaps just a (now) old-fashioned email blast with embedded links to further content would work for you. I’d love to hear from you on this.
The bloggers that attended were some of my favorites and the Summits last year and again this year have allowed me to make a personal connection with them, which is amazing. If you don’t already follow these terrific people and fellow RA patients, then please take time to get acquainted. There is a lot of knowledge and some great perspectives you can tap into:
- Angela of Inflamed: Living with Rheumatoid Arthritis
- Wren of RheumaBlog
- Mariah of From this Point. Forward.
- Amanda of All Flared Up: An Arthritis Blog
- Cathy of the Life and Adventures of Cateepoo
- Leslie of Getting Closer to Myself
- Britt of HurtBlogger
- and, of course, RA Guy!
I have lots of updates for you on the personal front re: job, treatment plan, etc. But I will save those for next time. Thanks for checking in.
**Janssen Biotech, Inc., paid for my travel expenses for the summit. All thoughts and opinions expressed here are my own.